Big B, my middle red, was born on November 16, 2006, at a very healthy 8 lbs 14 oz. He looked gigantic next to the other babies in the nursery, and was a handsome little redhead. We noticed right away that he had two small spots on his stomach. When we mentioned it to the doctors and nurses, they thought the spots were birthmarks. So we took him home, excited to have a new baby boy.
The first few days proved to be very scary, as we watched our baby
boy develop strange symptoms. He began to flush, out of nowhere, on his entire
body. It would start right around his nose, and spread slowly until his whole
body was red as a tomato, and when he did this, he would squirm and cry and seem
like he was in lots of pain. Soon after that we noticed blisters on the spots.
This was in just the first 3 days after bringing him home. We brought him in to
the pediatrician, and they thought it was inpetigo. When the cream didn't work,
they gave us a referal for the dermatologist.
When we called the
dermatologist, they said B couldn't be seen for 4 months. We described his
symptoms and how worried we were, and the best they could do was put him on the
cancellation list. So we prayed, and our prayers were answered because the next
day, they called back and asked if we could come the next day. And when we
brought him in, the dermatologist knew right away what he had: mastocytosis, a
rare blood disorder where the mast cells contain too many histamines that have
to be released into the skin and cause spots, flushing, and blistering. We were
reassured that his spots, thought they would continue to spread over his body,
would slowly fade until he reaches adolescence.
We love having Big B in
our family and hope to touch the lives of others who have children with
mastocytosis as we share our stories about him.
Posts about Blake: go here.